Let’s talk about epilepsy
Welcome to —Let’s Talk about Epilepsy - your podcast to hear real stories, expert insights, and honest conversations about life with epilepsy. Whether you’re living with epilepsy, supporting a young person who is, or just want to understand more, we’re here to help you feel informed, empowered, and connected. We bring together the voices that matter—young people, families, and experts—to share experiences, tackle challenges, and celebrate wins. Tune in and be part of something bigger!
Listen on:
Episodes
Wednesday Aug 13, 2025
Wednesday Aug 13, 2025
We hear what it’s really like to be part of the Youth Voice Network at Young Epilepsy. Jasmine chats with Milla, who shares their personal story and how being involved has helped them feel more confident and connected.
We also explain what the Youth Voice Network is, how it works, and how young people can get involved to make sure their voices are heard and their experiences shape the future of epilepsy support.
PLEASE NOTE: It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epilepsy can vary significantly. The information, experience and views shared on this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment.
Always consult with a qualified healthcare provider for personalised medical advice and support tailored to your specific needs. If you’re sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout
Useful links:
Young Epilepsy | Homepage
Youth Voice Network | Young Epilepsy
Youth Support | Young Epilepsy
Information About Epilepsy | Young Epilepsy
Follow us on Socials:
X: https://x.com/youngepilepsy/
Facebook: http://facebook.com/YoungEpilepsy
Instagram: https://www.instagram.com/youngepilepsy/
YouTube: https://www.youtube.com/user/youngepilepsy
LinkedIn: https://www.linkedin.com/company/young-epilepsy/
TikTok: https://www.tiktok.com/@youngepilepsy/
Contact: communications@youngepilepsy.org.uk
Wednesday Jul 30, 2025
Wednesday Jul 30, 2025
Moving from children’s to adult healthcare can feel like a big step – but you’re not alone. In this episode, we chat about what this transition really means for young people with epilepsy, share real stories, and give you practical tips to help you feel confident and in control.
A special thank you to the sponsors of this episode, Nutricia Ketogenics. Find out more: https://www.nutricia.com/
Please remember:
It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epilepsy can vary significantly.
The information, experience and views shared on this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment. Always consult with a qualified healthcare provider for personalised medical advice and support tailored to your specific needs.
If you’re feeling sad, worried or lonely, text ‘PURPLE’ to 85258 to chat with Shout. More info: https://www.youngepilepsy.org.uk/shout
Useful links:
Young Epilepsy | Homepage
Transitioning to Adult Healthcare with Epilepsy
Youth Support | Young Epilepsy
Mental Health Support Network provided by Chasing the Stigma | Hub of hope
Follow us on Socials:
X: https://x.com/youngepilepsy/
Facebook: http://facebook.com/YoungEpilepsy
Instagram: https://www.instagram.com/youngepilepsy/
YouTube: https://www.youtube.com/user/youngepilepsy
LinkedIn: https://www.linkedin.com/company/young-epilepsy/
TikTok: https://www.tiktok.com/@youngepilepsy/
Contact : communications@youngepilepsy.org.uk
Wednesday Jul 16, 2025
Wednesday Jul 16, 2025
This episode focuses on how epilepsy can affect mental health and wellbeing. We explain why this happens and how young people, parents, and carers can get support. There are also tips for healthcare professionals on how to include mental health care in epilepsy treatment.
NOTICE:
It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epilepsy can vary significantly.
The information, experience and views shared on this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment. Always consult with a qualified healthcare provider for personalised medical advice and support tailored to your specific needs. If you’re sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout
A special thank you to the sponsors of this episode, Nutricia Ketogenics. Find out more: https://www.nutricia.com/
Useful links:
Young Epilepsy | Homepage
Youth Support | Young Epilepsy
Mental Health Support Network provided by Chasing the Stigma | Hub of hope
For professionals:
NHS England » National bundle of care for children and young people with epilepsy
OPEN UK (Organisation of Paediatric Epilepsy Networks in the UK) | RCPCH
NHS England » Regional teams
Epilepsy12 audit | RCPCH
Follow us on Socials:
X: https://x.com/youngepilepsy/
Facebook: http://facebook.com/YoungEpilepsy
Instagram: https://www.instagram.com/youngepilepsy/
YouTube: https://www.youtube.com/user/youngepilepsy
LinkedIn: https://www.linkedin.com/company/young-epilepsy/
TikTok: https://www.tiktok.com/@youngepilepsy/
Contact : communications@youngepilepsy.org.uk